Updated: Jun 12
As with many conditions out there these two (ME and Fibro) are not getting enough research and there is not enough information out there to make people aware of what it is all about.
It can take way too long to get a diagnosis and often by the time you are you can be very sick indeed. It took me many years to be diagnosed with ME and then Fibromyalgia only four years ago.
When I did get diagnosed I felt a sense of relief, that was until as I looked into it I realised how much of a bad stigma was attached to it, so this impacted my symptoms with the stress of it all, then BOOM I then lost my hard earned career too and boy oh boy along came a very tough time. So when I hear people saying it is not real or they are making it up it makes me want to scream!!! I LOST MY CAREER, INDEPENDANCE, MONEY and in a lot of ways I then grieved for the life I once had..... WE ARE NOT MAKING THIS UP AND IT IS VERY REAL.
So as it is ME and Fibro awareness Day I wanted to get some information out on my blog for people to read, hopefully understand the condtion more, pass it on and not to judge those who have these conditions.
Common problems encountered most days:
Disabled bays - you get horrid looks and verbal abuse.
The way you look versus the way you feel.
You do a task - then that task destroys you but people do not generally see that later part!
That one day you went out and met up with a friend, they do not see that it can take up to a week or more to recover.
You have to say no to a lot - then people stop asking you.
You can't function - your just lazy.
Hiding the pain for others - then they think your making it up.
You walk along for a short time - so you must be fine I saw you.
Being fatigued - NOT the same as another person's TIRED.
Your SO moody - if they were in this much pain and this fatigued they would be worse than you since you have become a master of putting a face on it.
CRASH - Flare comes along and effects every moment of every day until it eases up.
Your weakness - you just need to get fit.
Everyone talks funny when they are really tired - NO WORDS.
Weight gain - you live on adrenaline ( sugar hungry cell, so you feel awful and crave sugar) and all the medications - You just need to excercise.
Here are some links with a lot of information for you to browse through: